Sebastian Alban Makhzangi

Mum and Dad grateful for the treatment their son received

On Saturday 14th November 2015 at 3.30am, Sebastian Alban Makhzangi (Lentil) was born unconscious and suffering from a lack of oxygen at Leicester General Hospital. This was due to him being in an undiagnosed breech position, only discovered mid birth at St Mary's Birthing Centre in Melton. It was an agonising time for Sebastian’s parents, Toby Makhzangi and Rachel Vicary, with Sebastian having to be resuscitated and transferred to the Neonatal Intensive Care Unit at Leicester Royal Infirmary for cooling treatment lasting 72 hours. Despite his difficult start, after 10 nights Sebastian was able to go home a normal and healthy baby, albeit remaining under consultant care for two years. 

Unfortunately, some babies suffer from lack of oxygen just before, or around the time of delivery. Over recent years, studies, including a large national study which Leicester was part of, have shown that by dropping a baby’s core temperature by a few degrees shortly after a brain injury can significantly improve the outcome, and decrease the chance of disability and handicap. However, this treatment is only available in specialist Neonatal Intensive Care Units.
 
Recently, the CenTre neonatal transport service and Leicester Hospitals Charity Little Lives Big Journeys Appeal raised money for the specialist cooling equipment to be fitted to our ambulances. This has allowed babies from around the region to access cooling treatment more quickly. Sebastian was one of the first babies to use the specialist transport cooling equipment and his brain seemed to respond very quickly. His subsequent MRI scans were normal.
 
Toby and Rachel decided to raise money for the Neonatal Unit via Leicester Hospitals Charity as a way of saying thank you for the care Sebastian received. Toby and Rachel, along with around 30 others, including friends and family, as well as staff from the Neonatal Unit, cycled 78 miles from Uppingham to Leicester and back via Oundle on Saturday 4th June 2016 raising a staggering £8,000!!
 
Consultant Neonatologist Jonathan Cusack said “Sebastian’s family found out that the equipment he used was funded by charitable donations and very generously offered to raise money for the neonatal unit themselves. Therefore, it seemed only fitting that the neonatal team dusted off their bikes to join in!”
 
The money raised will fund essential lifesaving equipment for babies that need intensive care shortly after birth, and to support their families through what can be an extremely difficult time.

We are indebted to both Leicester General and Leicester Royal Infirmary for saving the life of our son following severe complications at birth. The care we received at the LRI neonatal unit was particularly outstanding - they cared for us not only medically but incredibly humanely and personally through the most difficult of times. Their dedication and professionalism literally changed our world and whilst we can never repay our debt, we hope that our small charitable effort will go some way to helping them care for future babies in need.
— Toby Makhzangi and Rachel Vicary